Hemophagocytic lymphohistiocytosis (HLH) is rare life-threatening syndrome that can affect infants, children, adolescents, and adults. HLH is not a single disease, however; it is a group of disorders of the immune system that can be triggered by infections, cancer or rheumatologic diseases.
Because of how rare this affliction is, many individuals with HLH discover it after weeks or months of tests. There are very few treatment options available besides Gamifant. How do you help people understand this rare disease while also providing hope through a real patient testimonial video?